Record Details:

Boston University, Patient Rights Program

Organization: Advocacy Group
Facility Type: Info/Hotline
Status: Open

Address:
Boston, WW 00000

Region:
County/Parish:

Main/General Business Number: prp@bu.edu, please use email
Website: http://www.patient-rights.org/

Other Contacts:(hidden)

Mission: The Patient Rights Program is a program of the Health Law Department of the Boston University School of Public Health. Its mission is to promote the rights of patients through education and research. The Patient Rights Program offers news and general information about the rights of patients and research subjects, as well as links to public agencies and non-profit organizations with specialized information. The Patient Rights Program believes that people who are well-informed about their rights as patients are healthier and happier patients. Today, people who understand their rights as patients are more likely to successfully negotiate the health care system, use health insurance and managed care plans, and work with physicians and other health care professionals. Most important, a just health care system requires respect for the rights of patients.





This organization provides Temporary or Permanent Service? Permanent

Notes:

From the website:

The Health Law Department of Boston University School of Public Health created the Patient Rights Program to improve and promote the rights of patients throughout the United States. Protecting the health of patients often requires protecting their rights. The Patient Rights Program offers news and information about your rights as a patient or research subject.

For a brief summary of the legal rights of patients in the United States, go to: http://www.patient-rights.org/index.html and click on "Patient Rights at Your Fingertips". Click on Publications and Reports for articles and analyses of specific patient rights issues. If you have had an experience involving patient rights that you would like to share with others, visit our Real Life Experiences with Patient Rights page. Other resources can be found in Links.

Note on terminology: We use the term "patient" - instead of consumer - to describe anyone who needs health care of any kind, because not everyone can be a consumer and not everyone is covered by health insurance, but everyone will be a patient.

The Patient Rights Program is a general educational program and does not provide specific legal advice or referrals to individuals. The Patient Rights Program is funded by Boston University, is not affiliated with any other organization, and does not accept commercial advertising.

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Faculty Details

George J. Annas, J.D., M.P.H.r enowned as the father of patient rights, is also Chair of the Health Law Department at Boston University School of Public Health. He is the author or editor of more than 200 articles and a dozen books on health law and ethics, including The Rights of Patients; Judging Medicine; Standard of Care; and Some Choice. He also writes the "Legal Issues in Medicine" feature in the New England Journal of Medicine. Professor Annas is a member of the Institute of Medicine, a fellow of the American Association for the Advancement of Science, and co-founder of Global Lawyers and Phyicians. He has served on national and state commissions, including the Massachusetts Board of Registration in Medicine and the Massachusetts Task Force on Organ Transplantation. His current research focuses on human rights, genetic manipulations, human experimentation, and health care regulation.

Leonard H. Glantz, J.D. is also Associate Dean for Academic Affairs at Boston University School of Public Health. He has taught health law and patient rights for more than 25 years. Professor Glantz has published numerous articles, in both medical and legal journals, concerning the regulation of research with human subjects, the rights of children, reproductive rights, the rights of dying patients, and the rights of persons with mental disabilities. His most recent book is Children as Research Subjects: Science, Ethics and Law, which he edited with Dr. Michael Grodin.

Michael A. Grodin, M.D., a pediatrician and medical ethicist, is also Co-Director of the Boston Center for Refugee Health and Human Rights, and co-founder of Global Lawyers and Physicians. Dr.Grodin has published numerous articles in journals of law, medicine, and ethics, and co-edited four books: The Nazi Doctors and the Nuremberg Code: Human Rights in Human Experimentation; Children as Research Subjects; Meta-Medical Ethics: The Philosophical Foundations of Medical Ethics; and Health and Human Rights. Dr. Grodin has taught ethics and human rights for more than 20 years. His current research focuses on international human rights and health, patient rights in immigrant and refugee populations, research with human subjects, and the rights of people with mental illnesses.

Wendy K. Mariner, J.D., LL.M, M.P.H., Director of the Patient Rights Program, is also Faculty Coordinator of the J.D./M.P.H joint degree program at Boston University School of Public Health, and legal director of Boston UniversityÕs Project on Health Reform in the Russian Federation, funded by the United States Agency for International Development. Professor Mariner has taught health law for more than 20 years and served on many national and international commissions and boards. She has published numerous articles on patient rights, managed care, liability for injury, research with human subjects, reproduction, and vaccine policy. Her current research focuses on patient rights in managed care, insurance regulation, and health care reform.

Patricia A. Roche, J.D., brings a practical perspective to the Patient Rights Program, having practised law in Massachusetts, concentrating in family law. She has lectured and published articles on issues pertaining to the use of DNA tissue samples for medical and commercial exploitation, for-profit medicine, and laws protecting patient privacy. Her teaching and research focus on the privacy and confidentiality of personal information, including genetic information, the ownership and use of genetic materials in new biotechologies, and regulating research with human subjects.

Info Source/Changes:

Created At: Fri Jan 04 05:31:02 +0000 2008
Updated At: Sun Oct 05 14:44:35 +0000 2008
Updated By: LTel

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